Robert and Lee—a loving couple—try to maintain control of their life together in a situation rapidly spiraling out of control, due to Robert’s debilitating chronic illnesses.
Although a seasoned professional healthcare provider and caregiver, Lee finds herself face-to-face with unfamiliar challenges: Adult Protective Services, Medicaid and spend-down requirements, nursing home selection and life-style changes, estate planning, home healthcare assistance, legal issues of guardianship, Hospice care, and more. The journey is overwhelming.
“Barely Hanging On” is the story of Lee’s struggle to cope with tough-love decisions while dealing with the healthcare system, the legal system and the welfare system.
Sharing the author’s experiences can help you realize that you are not alone on the caregiver’s path, help prepare you for making a similar journey, and provide useful information, ideas and options for you to use while making your journey.